Minister of Propaganda for the Decepticon Empire (fierceawakening) wrote,
Minister of Propaganda for the Decepticon Empire
fierceawakening

Ashley X #2

actually I think it's #3. there was also a kid in Turkey, if I recall right, whose parents wanted this.  (ETA: Yep.)

http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2007/01/06/nashley06.xml

Copying the whole thing because it's important.

And yes, all they're mentioning IS the same thing I've got.  And in this case they don't even mention any cognitive disability at all. Which she also may have. But all this says is CP.

Which means all I see is she can't walk, she can't talk. Not she can't think (though as people have pointed out, there are huge flaws in people's understanding of mental disabilities anyway). Not that she can't understand what a period is.

I'm currently menstruating. It's chilling to think that that's a LUXURY.

Bodily autonomy: It's not just for the abortion issue any more...

I'm ready to scream. Cry.

====

I want my girl to have the 'Ashley treatment'

By Caroline Davies
Last Updated: 1:32am GMT 08/01/2007

Have your say Read comments

The mother of a severely disabled child said yesterday that she would "move heaven and earth" to get her daughter the surgery that has stopped an American girl from growing up.

Alison Thorpe [right] and her daughter Katie, who suffers from severe cerebral palsy, with hairdresser Kayleigh Corby
Alison Thorpe and her daughter Katie, who suffers from cerebral palsy, with hairdresser Kayleigh Corby

Alison Thorpe, 44, whose daughter Katie, 14, suffers from severe cerebral palsy, supported the controversial treatment, and believed it would have benefited her daughter.

She said she was fighting for her daughter to have a hysterectomy. And she criticised "so-called professionals" and ethicists who made crucial decisions from comfortable offices far away from the reality of living daily with a severely disabled child.

The case of Ashley X, aged nine but who has a mental age of three months because of a rare brain condition, has provoked furious debate across the world. Her parents persuaded doctors to perform a hysterectomy and remove her breast buds to prevent her body developing.

Ashley X is also undergoing oestrogen therapy to stop her growing taller than her current 4ft 5in or weighing more than her present 75lb because her parents believe it will improve her quality of life.
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Yesterday Ms Thorpe, from Billericay, Essex, who has another daughter Melissa, 10, said a hysterectomy was essential because her daughter would not understand or be able to cope with menstruation.

Katie is dependent on Ms Thorpe and her live-in partner, Peter Reynolds. "She is unable to do anything for herself at all, which includes feeding, she's doubly incontinent, she's unable to sit up," Ms Thorpe said.

"I like to think of myself as Katie's mum first and her carer second, but that does become very muddled and difficult at times and it's very, very hard to be a mum when you have to do the sort of things to your teenage daughter that I have to do on a daily basis.

"I applaud the parents in America. I think the parents are very brave. And yes, I would consider all of those for my daughter.

"I think medical intervention is justified if the child can be given an increased chance of enjoying the life that they have and prolonging that life as well.

"If that person is enjoying that life then I think it shouldn't be for us not to intervene just because someone sitting on their high morals in a hospital a long way away from what is really happening at grassroots level says so."

She said her request for a hysterectomy for her daughter had been met with reluctance by doctors, and she would probably have to go to court to fight for it.

Doctors had suggested putting Katie on the Pill, or offered three-monthly injections. But Ms Thorpe was concerned about possible side effects.

"I feel from Katie's point of view the discomfort, the stomach pains, the sheer nuisance of having periods, Katie won't understand that. All she will know is she is in pain. She will not understand what is happening to her body and it could be very confusing and very frightening for her."

Ms Thorpe attacked those making such a crucial decision as being out of touch. And said she was incensed at the reaction to the Ashley X case.

"Listening to the reactions from consultants and so-called professionals in the UK I'm afraid just makes me extraordinarily angry," she told Radio 4's Today programme."

"I have to say I really don't think they have a clue. Yes, they see these children in their surgeries for a few minutes at a time. But they don't live with children like Katie, they do not live with them on a daily, hourly basis. They don't have to do as I and many other parents like me have to do just to give their child an existence.

"And if by having a hysterectomy or moving things forward in that way, if that gives Katie a greater chance of life and enjoying her life, then I will move heaven and earth to actually get that for Katie."

Coping with Katie, whom she raised as a single mother until she met Mr Reynolds, had got "harder and harder" as she got bigger.

"Yes, she still had problems when she was younger but they were more manageable problems," said Ms Thorpe.

Mr Reynolds, a floor fitter who is not Katie's father, said it was noticeable that as Katie had got bigger, it was harder for her to enjoy life.

"If I wasn't here, Alison couldn't cope on her own. Katie has just got so big and heavy," he said.

"The carers who come here are not allowed to lift her unless there are two of them. We have a hoist, but it's broken.

"If Katie had had the same treatment as Ashley, I am convinced it would have been better for her.

"I used to take her to Legoland and on the rides and she really enjoyed that. But we can't manage that any more because of her size.

"She always used to go horse riding with us, and trampolining and swimming. But we can't do that any more because we can't physically hold her.

"If she had stopped small, she would be having a much better time. It's too late for that now, but we can do something about the hysterectomy side of things.

"Alison will have to go to court. And that is right. Katie must have a voice too and independent legal representation. But we just know it would make her life so much better."
Tags: ashley x, cp, disability, stupid parent syndrome, the ashley treatment, violence against pwd
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